I am a physically & cognitively challenged
34 year old woman living in the community and this is my story.
When I was born I only weighed 2 lbs.. 13 ounces. Prior
to my birth, my mother, Fae and I both had serious health problems.
As a result, I suffered massive brain damage. Today, my disabilities
include the following: microcephaly, cortical blindness, spastic
quadriplegia, profound mental retardation, impaired stomach motility,
GERD, reactive airway disease, and seizure disorder.
I have had four major orthopedic surgeries in my life,
been home schooled, used computers for communication, developed real
speech, studied music, graduated from Perkins School for the Blind
in 1996, and in 1997 established my own home in the community.
What a beginning!
Who would have believed that I could begin my life
with so many permanent obstacles that I've had to overcome and arrive
to where I am now: a happy well adjusted woman with a multitude of
interests, dear long term friends, good health and a desire to make
the world a better place for all people.
Support Services 24 Hour Per Day 1:1 or 1:2 Supports
Skin care, medication delivery and monitoring,hydration&nutrition
via G-tube,physical therapy,application of orthotic devices, occupational
therapy, speech and language, music, life skills,social/cultural
support, and medical team access for health care maintenance.
Here's a list of some of my favorite community activities:
Boston Lyric Opera, North Shore Music Theater, Museum of Science and
Museum of Fine Arts